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Table of Contents

  1. Key questions
  2. Example of harm from social science research -
  3. Research merit and integrity
  4. Justice
  5. Special protections for vulnerable communities
  6. Ethics Controversies: Case Studies - Debates about the ethics of the Tearoom Trade Study Methodology
  7. Case 2: The Human Terrain System
  8. Informed consent
  9. Freedom from coercion
  10. Case 3: Gang Leader for a day
  11. When social scientists uncover crime through their research
    1. Confidentiality for research participants when crime occurs
  12. Other ethical problems in Venkatesh's research
  13. Responsibilities to people/cultures being studied
    1. Informed Consent
    2. Informed consent scenario
    3. Best practice:
    4. Protecting identities of participants
    5. Case Study
    6. Protecting identities of participants: scenario
  14. Do no harm: think about the ramifications of the research
  15. Reciprocity: paying people for their contributions
    1. Reciprocity and collaboration with the community you work with
  16. Intimacy in research: maintaining informed consent over time
    1. Case Study:
    2. Intimacy in ethnographic research: sex and the field
  17. Respect for persons:
  18. Protection from psychological or physical harm
  19. Intellectual property
  20. Summary of Principles of Ethical Research
  21. Council for International Organization of Medical Sciences (CIOMS)
  22. Death of Jesse Gelsinger (1999) Conflicts of Interest Example
  23. Respect for Persons
  24. Informed Consent
    1. Voluntariness
    2. Comprehension
    3. Disclosure
  25. Case Study: Study on Campus
  26. Informed Consent
    1. Consent Document 1
    2. Consent Document 2
  27. Requirements for documentation of informed consent
  28. Decisional Capacity
  29. Children's Participation in Research
    1. Lack of assent from a child
  30. Research with prisoners
  31. Community Consultation
  32. Beneficence
  33. Justice
  34. Compensation for Research Participation
    1. Avoiding undue inducement
    2. Case Study involving confidentiality of clinical data
  35. Confidentiality

Lack of assent from a child

Imagine you are doing a research project with a 7 year old child, which requires some blood to be removed from the child. The parents agree for the child to take part, and the child also agrees. When the nurse comes towards him with the needle to take the blood, he screams in fright and says he doesn't want to take part. Do you need to withdraw the child from the study?

This is not an easy question to answer as it will depend on a number of factors: can the child provide their own consent; how persistent is their fear of taking part, could they wait with the option to participate later if their fear subsides.