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Table of Contents

  1. Key questions
  2. Example of harm from social science research -
  3. Research merit and integrity
  4. Justice
  5. Special protections for vulnerable communities
  6. Ethics Controversies: Case Studies - Debates about the ethics of the Tearoom Trade Study Methodology
  7. Case 2: The Human Terrain System
  8. Informed consent
  9. Freedom from coercion
  10. Case 3: Gang Leader for a day
  11. When social scientists uncover crime through their research
    1. Confidentiality for research participants when crime occurs
  12. Other ethical problems in Venkatesh's research
  13. Responsibilities to people/cultures being studied
    1. Informed Consent
    2. Informed consent scenario
    3. Best practice:
    4. Protecting identities of participants
    5. Case Study
    6. Protecting identities of participants: scenario
  14. Do no harm: think about the ramifications of the research
  15. Reciprocity: paying people for their contributions
    1. Reciprocity and collaboration with the community you work with
  16. Intimacy in research: maintaining informed consent over time
    1. Case Study:
    2. Intimacy in ethnographic research: sex and the field
  17. Respect for persons:
  18. Protection from psychological or physical harm
  19. Intellectual property
  20. Summary of Principles of Ethical Research
  21. Council for International Organization of Medical Sciences (CIOMS)
  22. Death of Jesse Gelsinger (1999) Conflicts of Interest Example
  23. Respect for Persons
  24. Informed Consent
    1. Voluntariness
    2. Comprehension
    3. Disclosure
  25. Case Study: Study on Campus
  26. Informed Consent
    1. Consent Document 1
    2. Consent Document 2
  27. Requirements for documentation of informed consent
  28. Decisional Capacity
  29. Children's Participation in Research
    1. Lack of assent from a child
  30. Research with prisoners
  31. Community Consultation
  32. Beneficence
  33. Justice
  34. Compensation for Research Participation
    1. Avoiding undue inducement
    2. Case Study involving confidentiality of clinical data
  35. Confidentiality

Case Study:

A Researcher was researching cabaret dancers in Cuba and spending a lot of time with them. She gets a call from one inviting her to a local restaurant. He has illegally tapped his girlfriend's (another cabaret dancer's) phone and found her cheating on him. He wants the researcher to let people know this. She refuses and he tells everybody who become sucked into a discussion about Farah's morality and the morality of cabaret dancers in general, with some claiming they are halfway to being prostitutes and others arguing that it is a societal problem that demean and refuse to respect their profession. This is precisely the topic of the researcher's PhD. The researcher reflected on whether she could include the material from these discussions including the discussion of Farah's behaviour. An initial problem was confidentiality and changing contextual details so that Farah was not recognisable but another problem was that, on reflection, she decided the dancers had not been talking to her as a researcher but as a friend. She decided whilst she could include general discussions about the morality of cabaret dancers she could not include discussion around this particular incident.