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Table of Contents

  1. Key questions
  2. Example of harm from social science research -
  3. Research merit and integrity
  4. Justice
  5. Special protections for vulnerable communities
  6. Ethics Controversies: Case Studies - Debates about the ethics of the Tearoom Trade Study Methodology
  7. Case 2: The Human Terrain System
  8. Informed consent
  9. Freedom from coercion
  10. Case 3: Gang Leader for a day
  11. When social scientists uncover crime through their research
    1. Confidentiality for research participants when crime occurs
  12. Other ethical problems in Venkatesh's research
  13. Responsibilities to people/cultures being studied
    1. Informed Consent
    2. Informed consent scenario
    3. Best practice:
    4. Protecting identities of participants
    5. Case Study
    6. Protecting identities of participants: scenario
  14. Do no harm: think about the ramifications of the research
  15. Reciprocity: paying people for their contributions
    1. Reciprocity and collaboration with the community you work with
  16. Intimacy in research: maintaining informed consent over time
    1. Case Study:
    2. Intimacy in ethnographic research: sex and the field
  17. Respect for persons:
  18. Protection from psychological or physical harm
  19. Intellectual property
  20. Summary of Principles of Ethical Research
  21. Council for International Organization of Medical Sciences (CIOMS)
  22. Death of Jesse Gelsinger (1999) Conflicts of Interest Example
  23. Respect for Persons
  24. Informed Consent
    1. Voluntariness
    2. Comprehension
    3. Disclosure
  25. Case Study: Study on Campus
  26. Informed Consent
    1. Consent Document 1
    2. Consent Document 2
  27. Requirements for documentation of informed consent
  28. Decisional Capacity
  29. Children's Participation in Research
    1. Lack of assent from a child
  30. Research with prisoners
  31. Community Consultation
  32. Beneficence
  33. Justice
  34. Compensation for Research Participation
    1. Avoiding undue inducement
    2. Case Study involving confidentiality of clinical data
  35. Confidentiality

Case Study

Here's a real-life scenario where protecting the identities of participants was really important. Jenniferwas researching dating practices in a Middle East country. One of her participants Selwa described how she was engaged to a man Hassan and had sex with him during the engagement. He later broke the engagement off and Selwa was unable to tell her parents and worried about her ability to marry after losing her virginity. Selwa later married and never told her husband or her parents what had happened.

Jennifer was worried about protecting Selwa's identity and worried that it might not be enough to use a pseudonym as there might be contextual factors in her description that would enable Selwa's husband or parents to recognise her in the research. She decided to write about Selwa during her engagement and use a different pseudonym for writing about her married life without connecting the two. She also spoke in the research of romantic intimacy but did not explicitly say they'd had sex to further protect Selwa.