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Table of Contents

  1. Key questions
  2. Example of harm from social science research -
  3. Research merit and integrity
  4. Justice
  5. Special protections for vulnerable communities
  6. Ethics Controversies: Case Studies - Debates about the ethics of the Tearoom Trade Study Methodology
  7. Case 2: The Human Terrain System
  8. Informed consent
  9. Freedom from coercion
  10. Case 3: Gang Leader for a day
  11. When social scientists uncover crime through their research
    1. Confidentiality for research participants when crime occurs
  12. Other ethical problems in Venkatesh's research
  13. Responsibilities to people/cultures being studied
    1. Informed Consent
    2. Informed consent scenario
    3. Best practice:
    4. Protecting identities of participants
    5. Case Study
    6. Protecting identities of participants: scenario
  14. Do no harm: think about the ramifications of the research
  15. Reciprocity: paying people for their contributions
    1. Reciprocity and collaboration with the community you work with
  16. Intimacy in research: maintaining informed consent over time
    1. Case Study:
    2. Intimacy in ethnographic research: sex and the field
  17. Respect for persons:
  18. Protection from psychological or physical harm
  19. Intellectual property
  20. Summary of Principles of Ethical Research
  21. Council for International Organization of Medical Sciences (CIOMS)
  22. Death of Jesse Gelsinger (1999) Conflicts of Interest Example
  23. Respect for Persons
  24. Informed Consent
    1. Voluntariness
    2. Comprehension
    3. Disclosure
  25. Case Study: Study on Campus
  26. Informed Consent
    1. Consent Document 1
    2. Consent Document 2
  27. Requirements for documentation of informed consent
  28. Decisional Capacity
  29. Children's Participation in Research
    1. Lack of assent from a child
  30. Research with prisoners
  31. Community Consultation
  32. Beneficence
  33. Justice
  34. Compensation for Research Participation
    1. Avoiding undue inducement
    2. Case Study involving confidentiality of clinical data
  35. Confidentiality

Informed consent scenario

You are conducting a research project into university culture and parties. All of your friends are aware of the project and have agreed that you can observe them at parties as part of your research. You go to a party with your notebook ready to take field notes. There is someone there you've never met before who has lots of interesting things to say. He is a bit drunk. You forget that he doesn't know about your research and start taking notes. He asks what you're doing. You explain about the project and he seems a bit hesitant about it and says "I don't know about that." What should you do in this situation?

a).

1

Informed Consent Scenario

You are conducting a research project into university culture and parties. All of your friends are aware of the project and have agreed that you can observe them at parties as part of your research. You go to a party with your notebook ready to take field notes. There is someone there you've never met before who has lots of interesting things to say. He is a bit drunk. You forget that he doesn't know about your research and start taking notes. He asks what you're doing. You explain about the project and he seems a bit hesitant about it and says "I don't know about that." What should you do in this situation? Choose the most appropriate response.

a)
b)
c)
The best response is b). If he is drunk it will not be informed consent and you need to contact him when he is sober. If he does not consent you need to destroy the data you have collected. He is not really in a position to give informed consent here, so it is not fair to include his responses. The best answer is b) to contact him at a later date when consent can be obtained. If it is refused you need to shred the notes already taken. Your answer has been saved.
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